Understanding Patient Perspectives of Self-Care in the Management of Chronic Disease

Jean Burgess, Roberta Clark, Kieth De'Bell

Abstract


This workshop will provide participants with an understanding of how appreciative inquiry based methods can help us learn from patient experience, develop self-care plans and identify the roles of various support groups within those plans, and develop a framework for chronic disease management which is based on lessons learnt from patient experience.

Understanding patient experience with and perspectives on what supports on-going self care to manage chronic disease is critical to a whole person approach to chronic disease care. While the individual’s experience of chronic disease self-management may vary from individual to individual, our recent work demonstrates that appreciative enquiry is an effective tool for understanding the key support structures for effective management of self-care. This work also points to appreciative inquiry as an effective tool for patients and care-givers in developing approaches to individual self-care plans.

After a brief presentation of our recent findings, workshop participants will have an opportunity to use a modified appreciative inquiry approach to consider aspects of chronic disease care and particularly to discuss those factors that support chronic disease management. Appreciative Inquiry, as a positive form of narrative inquiry will elicit stories that make these supportive factors more concretely visible and comprehensible. Workshop participants will also be provided with a brief overview of thematic analysis as a way of identifying common themes in the appreciative inquiry data and developing a model of self-care support.


Keywords


inquiry methods; chronic disease care; thematic analysis



DOI: http://dx.doi.org/10.26443/ijwpc.v1i1.7

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