Beyond numbers: learning from the experience of kidney-transplant recipients
Keywords:kidney transplantation, transliminal-self
The present article presents the findings of a phenomenological study, which sought to explore the subjective experience of kidney transplantation amongst young people who lived the transition from pediatric to adult care.
This study was conducted using a qualitative phenomenological approach, involving semi-directed interviews with five people, three of whom received their kidney transplants as children, the other two as young adults. An in-depth analysis of their narratives revealed the paradoxical nature of the kidney transplant experience for these individuals; existing between self and other, sickness and health, and at times, between life and death. The liminal nature of transplantation was found to be an important quality of the experience, thus leading to an analysis of the experience in relation to the theoretical concepts of liminality and rites of passage. This analysis culminates in the introduction of the term transliminal-self, to encompass the complexity of the experience. Finally, the article concludes with a discussion regarding the relevance of the subjective experience for the practice of medical and allied health professionals who work with transplant recipients.
How to Cite
Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution License that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal. Creative Comons 4.0 CC-BY
Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work (See The Effect of Open Access).